LWB Cleft Nutrition Video

Emma isn't cleft affected - her special need is nystagmus. It is an eye condition where the eyes move back and forth rapidly. We don't really know how bad it is or how it is affecting her vision. The reports that we have vary when they describe it and the personal reports we have from people who have met her are that her vision is ok. For those who don't know our sons as well, both Ben and Ethan are cleft affected. They both had surgery on their lips while they were still in China and will have to have surgery on their gumlines sometime in the next couple of years. We are very grateful that they were both so well cared for while they were still in China. Ethan lived with a foster family and Ben had a very special nanny that took him home with her at night. They were two of the very lucky ones. There are thousands of cleft affected children in China who haven't been so lucky but organizations like Love Without Boundaries are working to make a difference. We are going to take cleft bottles to China with us for the orphanages in Anhui. It isn't much for us to do - just get them on and off the baggage carousel but it is one small baby step toward making that difference that might someday make all the difference in the world to a baby and a family that will love them.
I think this ties into the Daffodil post - what small thing can you do today to make a difference?!